Maryville mom gets to walk with her disabled son for the first t

Maryville mom gets to walk with her disabled son for the first time

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After about 12 weeks of waiting, the device, a harness system made by the company Firefly Upsee, has arrived, and we couldn't wait to see how it works. After about 12 weeks of waiting, the device, a harness system made by the company Firefly Upsee, has arrived, and we couldn't wait to see how it works.
The device is made up of several pieces of durable material, with straps and Velcro on each part to keep Evan safely upright, attached to his parent by the straps, with his feet fastened into rubber shoes. The device is made up of several pieces of durable material, with straps and Velcro on each part to keep Evan safely upright, attached to his parent by the straps, with his feet fastened into rubber shoes.
"It's a lot of steps, definitely worth it," Shannon Hepp said. "He really enjoys it." "It's a lot of steps, definitely worth it," Shannon Hepp said. "He really enjoys it."
"I hope we can go on walks outside and down the driveway and go to the pond and different places," his brother Noah said. "I hope we can go on walks outside and down the driveway and go to the pond and different places," his brother Noah said.

By LORI TUCKER
6 News Anchor/Reporter

MARYVILLE (WATE) - A Maryville mom recently got to experience walking with her disabled son for the first time.

We first met Shannon Hepp and her 6-year-old son Evan back in April.

Previous story: New harness may help Maryville child with seizure disorder walk

Hepp had just ordered a breakthrough device she discovered on Facebook, developed by a mother in Ireland for her daughter who has cerebral palsy.

The little girl in Ireland was able to walk down the aisle as a flower girl at a wedding as a result of the invention.

Evan has a rare seizure disorder that has affected his development in a major way.

After about 12 weeks of waiting, the device, a harness system made by the company Firefly Upsee, has arrived, and we couldn't wait to see how it works.

The device is made up of several pieces of durable material, with straps and Velcro on each part to keep Evan safely upright, attached to his parent by the straps, with his feet fastened into rubber shoes.

Hepp picks up her son and sits down for the final and most important part of the process: with help from big brother Noah, mom and Evan's feet are strapped into the shoes that are connected.

With that, mother and son are up and walking. It's something Hepp never really thought Evan would be able to do.

"It's a lot of steps, definitely worth it," Hepp said. "He really enjoys it."

Looking at the smile on Evan's face, that is certainly clear. Noah is excited about the possibilities, too.

"I hope we can go on walks outside and down the driveway and go to the pond and different places," he said.

This new perspective for Evan is opening up the world around him.

"It probably feels more independent for him because everything's right there in front of him versus being carried and looking over my shoulder, " Hepp said.

It's a workout for mom and son, helping Evan build strength in his legs. It's also giving the two an unforgettable experience.

The Firefly Upsee costs around $500.

More information on the Firefly Upsee

 

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